Ethical treatment of whole genome research participants
Seen on Huliq.com:
In a new essay published in the open-access journal PLoS Biology, Timothy Caulfield and his colleagues argue that the ability to sequence a person’s entire genome has created a whole new set of moral challenges that standard research ethics guidelines were not designed to solve.
Several aspects of whole-genome sequencing challenge existing research ethics norms. Some of the most pressing ethical issues arising from whole genome research include the vast amount of data produced, the uncertainly regarding future research uses of the data, implications of the data for family members, and the technological ability (and expectations) to publicly release the data. To date, very little effort has been put into providing new ethical standards to address these unique challenges.
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