Hospital, uni in blame game over research breach

Julie Robotham reports:

Sydney Children’s Hospital and the University of NSW have blamed each other for a spectacular governance failure which saw the medical records of disabled children used in student research without their parents’ consent or approval from either institution.

The university said it stopped the research in 2007 when it first came to light that the records were being used in a student’s thesis. But documents obtained by the Herald show separate research using children’s records was proposed more recently.

In a proposal by the now defunct Motion Analysis Service, university researchers sought funding to study orthotics use in children with cerebral palsy, using data from gait assessments intended to help doctors with surgical decisions.

Read more in the Sydney Morning Herald.

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