Navigenics #6 – â€œPrivacy, Insurance, GINA and Ethicsâ€
Elaine Warburton of Genetics & Health writes:
Continuing G&Hâ€™s exclusive interview with Navigenicsâ€™ Medical Director Dr Michael Nierenberg, we explore the whole issue of privacy, insurance, GINA and ethicsâ€¦..
One of the main consumer concerns is that of privacy of information, both in terms that a genetic test has been undertaken but also that the results of the test are kept private and out of the public domain. At the time of writing, the controversial GINA (Genetic Information Non-discrimination Act) is being passed by the US Senate which will enable genetic testing information to be kept private and not be used to discriminate against an individual, particularly by the insurance industry. The insurance industry is understandable against the Bill.
Dr Nierenberg. Navigenicsâ€™ Medical Director, advises that Navigenics takes the whole issue of security of data very seriously.
â€œNavigenics takes precautions such as multiple servers, encryption and security audits â€¦ each member has access to their own section of the website which is password protected. However, if a member forgets their password, there is a highly complicated route to get back in. It is not just a case of emailing the password to an email address. â€¦ GINA legislation will be helpful in terms of protecting sensitive informationâ€.
The company has also incorporated a rigorous Ethics Advisory Board tasked to develop policies and report to the Executive Board in the fields of bioethics, patient rights, health information technology and technology and data security.
Read more of the interview on Genetics & Health